The definition of Sensory Integration Disorder is: A disorder characterized by the inability to accurately process information coming to the brain from the senses, which results in inaccurate judgment of sensory information such as touch, sight, movement, taste and sound. Hot can seem scalding, a little loud can feel like your ear drums are going to be blasted out, sticky and dirty might be nearly unbearable causing you to stop being able to function, 3 feet up might as well be 10 stories for how unsettling it feels. Fortunately for Luke, his challenges are pretty minor on the spectrum, in most instances he's just like a regular 3-year-old, but the S.I.D. does rear its ugly head frequently enough that we are presented with some interesting reactions to textures, dirty, temperatures, transitions, and location in space. Did you know there are actually seven senses? I didn't! In addition to the typical five, there is also proprioceptive sense, or sense of body position (which for Luke is just fine) and a vestibular sense, or sense of balance (which, especially at the start of therapy, was the source of some of Luke's biggest issues).
Once Luke was properly diagnosed, things seemed to get better and better quickly. It was like we suddenly understood what had been going on with him, and knew, with the help and advice of Susan, how to help him deal with the things that for him were so scary, difficult, and at times painful. Thank you, God, for amazing, on-the-ball, intelligent therapists who pay attention! With small changes, careful scheduling and really, just being aware that he wasn't just being difficult but was truly having a physical reaction to some sensory input, life, for all of us, has become so much smoother and Luke has busted out of his shell. We still have bad moments, or bad days, or bad chunks, but now we know why, what to do and how to work them out.
Even with our insurance coverage running out, we could have appealed for aid to a local charitable organization of the Masons who generously provide grants for families who do not have insurance coverage for necessary therapy, but Luke has been doing so well, neither Susan nor I believed it was necessary to continue. So today we played our hearts out, and then sadly said our goodbyes. We feel so grateful to the therapists we saw there, and feel we are much more well equipped to deal with and help Luke through the rough patches.
And just so the fun doesn't stop, we're checking into a gymnastics class for Luke, to continue the big muscle work that seems to help him so much.
Here's Luke getting ready to jump into the foam pit! Climbing through the foam was one of Luke's favorite things to do at therapy.

